Tourette Syndrome Association of Greater New York State
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About Us

Tourette Syndrome Association
Greater NY State Chapter
20 Thomas Jefferson Lane
Snyder, NY 14226

Phone: 716-839-4430
Fax: 716-839-1956
E-Mail: conners@roadrunner.com

The Tourette Syndrome Association of Greater New York State is an affiliate chapter of the national Tourette Syndrome Association, Inc. TSA, Inc. is a national voluntary health organization dedicated to identifying the cause, finding the cure and controlling the effects of TS. Research programs, professional and public education and individual and family services are made possible through the generosity of its donors.

TSA of Greater NY State was founded in 1984 by six volunteers from the Buffalo area. It was originally founded under the name of the Western NY Chapter and until this year we maintained that name. Over the 21 years that we have been in existence, we have gradually taken on the major part of New York State and therefore recently voted to change the chapter name to more appropriately describe the area that we are serving.

We serve an area from Buffalo to the Pennsylvania border to the south. There is a Greater Rochester TSA Chapter that serves the greater Rochester, NY area. Our chapter then picks up from Rochester and continues east to serve Syracuse and all of the central, NY area, Binghamton and all of the central southern region, Albany and all of the capitol district area, Watertown, Potsdam, Governeur, Canton, Malone, Ogdensburg, Plattsburg and all of the Adirondack region in Northern New York State.

We currently have 3 support groups in western NY, central NY and the Utica area. See the Support Groups page for further information.

Board of Directors

We have a 11 member board of directors which meets 4 times annually. Our current officers are:

President:
Susan Conners
Snyder, NY
Chairman
Marge Henning
Kenmore, NY
Vice Chairman
John Silverwood
Williamsville, NY

Treasurer:
Mary Russell
Tonawanda, NY
Secretary:
Teresa Missel
West Seneca, NY

Other Board members

Theresa Diegelman
Hamburg, NY
Gordon Scherer
Buffalo, NY
Chris Grandits
Akron, NY
Kristen Cervi
Cheektowaga, NY
Keith Russell
Tonawanda, NY
Tricia Gates
Orlando, FL

Support Group Leaders

Becky Lunkenheimer
Memphis, NY
Tony and Debbie Bartolotti
Utica, NY

Darla Brown
Andover, NY
Judy Doepel
Ballston Lake, NY
Pam Vitali
Binghamton, NY
Keith Tiley
Dutchess & Ulster Counties

The Greater New York State Chapter of TSA provides the following services to its members:

  • Advocacy
  • Educational In Services
  • Speakers’ Bureau
  • TS Literature
  • Parent/Adult Support Group
  • Children’s Support Group
  • Help Line
  • Newsletter
  • Children’s Overnight Recreation Program
  • Fund Raising Activities
  • Annual Family Picnic
  • Children’s Activities
  • Conferences and Workshops
  • Annual Golf Tournament

Joining TSA

To become a member of TSA, Inc. and TSA of Greater NYS, please complete the form available below, and return it to:

TSA, Inc.
42-40 Bell Blvd.
Bayside, NY 11361

Membership Form

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